Wednesday, August 26, 2009

Riley Update

What a wonderful day! Yesterday we went to Riley for an EUA; the first since April. While Marilyn is under anesthesia, the doctors are able to measure her optic nerve pressure, the growth of her eyes and assess the condition of her optic nerves. After what seems like an eternity (about an hour and a half) the doctor came in with an update....

Marilyn is GREAT! Her optic nerve pressures were 10 and 12- NORMAL RANGE! Her eye growth is normal, and her larger, left eye has actually decreased a bit in size. And best of all, her optic nerves are COMPLETELY healthy! There has been NO damage from the Glaucoma, and right now her eyes are looking like they have never been through trauma! Her Ahlmed valve is in perfect placement, and everything is PERFECT!

This is the VERY best news we could have received. We could not be more excited and thankful. We feel so very blessed to be part of such a large network of prayers that have now truly been answered.

Marilyn returns to Riley for an office visit in six months and until then only needs to wear her glasses. No restrictions, no drops! Keep up the prayers- they are working!!!


Daddy & Marilyn before the exam. Our poor little girl was so hungry. The OR was running behind, and she had not eaten in over 18 hours by the time they put her to sleep.


She even fell asleep for a little bit before her exam, with her Mommy and her blankies.

Holding her baby and wondering, "Is it my turn yet?"

Trying to find her foot to remove her id bracelets.

Grandma (my mom) was so cold and shivering in our room that a nurse actually brought her a warm blanket to use. Grandma is perfect at distracting Marilyn as she gets restless while we wait. She is even better at reminding me to be patient and calm while we wait for the doctors return.
After we got home, Marilyn curled up on her big girl bed with her Winnie the Pooh gang and took a rest.

Which did not last long!
She was then ready to play and her gang was on the move.
I am so thankful she handled the anesthesia well and was feeling back to normal before bedtime. I remember the terrible times she had after her initial surgeries and the long, sleepless nights she had as she fought through the pain. I can only continue to pray that those times are behind us, and she will continue to be blessed with good reports.
Thank you so much for the amazing support and continued prayers! It means the world to know we have such a strong group of support and powerful prayer network.

8 comments:

Anonymous said...

What wonderful news about Marilyn.....so glad everything is going well. God bless you all and see you next time we are together. Uncle Wayne and Aunt Jessee wish you all the best.

Ada said...

Oh my gosh, heartbreak for the picture of her in her pink jammies standing at the door. So precious.

Anonymous said...

Great news! We are so glad everything went well. Isn't it wonderful how fast kids bounce back!!

Love,
Aunt Deb

Anonymous said...

We, too, are so happy for all of you! As you say the ocean of "Prayer Warriors" has been active! And they will continue to be so. Our Love and prayers will continue to flow.
Robert and Kirk

Ron said...

We were so thrilled with the wonderful report on Marilyn's eyes. Prayers were definitely answered. Praise God! Now it's time to look forward to that 2nd birthday. We love you all. Grandma & Grandpapa

Brett said...

We're glad to hear that everything is going well with the little bit. Looking forward to the birthday festivities!
-Brett

Liz said...

wonderful news!!!

Kate said...

It's hard to imagine all that she has been through in her short two years but we are so excited that she has pulled through so wonderfully. She has been surrounded by so much love and will continue to be. It is such wonderful news. Hearing the excitement in your voice when you called from the hospital almost made me cry. Take a moment to enjoy the good news.