Sunday, November 30, 2008
With Marilyn's recent positive prognosis, we are beyond grateful this year. Hunter and I continue to believe that God truly has Marilyn in his hands and is guiding the doctors and their courses of treatment. There has been no greater excitement than to hear that her pressures are good and that she is on the right track.
We are thankful for Riley and to the staff of doctors, nurses and fellows who have taken a special interest in our little Marilyn. We are so blessed to be so close to this amazing hospital. We are grateful to our families, friends, acquaintances and even strangers that hold our Marilyn in their prayers. It boggles my mind and warms my heart to hear of so many people that have heard of Marilyn and lift her up in prayer. I know these prayers have been heard and will continue to be.
On this Thanksgiving, we are so grateful for your prayers and warm wishes and thank you from the bottom of our hearts. Happy Thanksgiving!
Tuesday, November 18, 2008
Her pressures are BOTH NORMAL!!!!
He said that her optic nerves look good and the valve in her left eye is in perfect placement. We are so very very happy!!! I am elated just writing this. I feel like this is my birthday wish come true and the answer to so many prayers.
Thank you, thank you, thank you for your continued prayers and support. God is so good! Marilyn will return to Riley for an office exam in December and then will continue to be monitored, so please keep up the prayers, they are obviously being heard!
Tuesday, November 4, 2008
Marilyn underwent surgery on October 14. At that time her pressure was still much too high in the left eye, and it had experienced significant growth since her last exam. The doctors decided it was time to get more aggressive.
They implanted an Ahmed Glaucoma Valve in her left eye which is designed to serve as a secondary drain for the excessive pressure and release the fluid into her blood vessels. The procedure took about two hours, and they came out with the highest of hopes.
Unfortunately, there are numerous complications that can be associated with an artificial valve of this nature, such as infection, dislocation or cataracts. But so far she has done very well. We returned to Riley today for her two week post-op exam, and it looks great. The blood has nearly all disipated from her eye, and she is doing very well.
The doctors have some concern that her left eye prescription is worsening. With already such a significant loss of vision, there is the concern that the eye may not be capable of seeing. Once the pressure is under control, they will begin the process of salvaging her left eye's vision. The wonderful part is that she sees great with the glasses, and she leaves them alone! Thankfully she was put in glasses at such an early age that now she knows no alternative.
As Marilyn had her one year anniversary as a Riley patient, we are still full of hope! Marilyn's right eye is still doing great! Please keep her in your prayers as we continue to regulate her left eye pressure. She returns to Riley for another EUA on November 18th.
Here are a few of her back in the room... she loves the water so much she did not want to leave her floaty boat. Perhaps she will be a great swimmer like her Daddy, Aunt Lizzie & Uncle Chris.All wiped out, with her blankie and her baby.
However in mid October, on one gorgeous fall day, we did venture out of the house. We headed to Anderson Orchard's pumpkin patch. Due to the pain, the trip was short, but I just had to see Marilyn in the pumpkin patch. Last year she was only 4 weeks old... so this was a major change. She walked through the field and played the pumpkins like drums... too cute!